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Precision Medicine Initiative

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A Conn. FQHC chief see great opportunities in PMI

 

Mark Masselli, founder and CEO of Community Health Center Inc., in Connecticut, says that the Precision Medicine Initiative presents great opportunities for it.

When CHC heard  that its name was on the list of six Federally Qualified Health Centers tapped to participate in the PMI Cohort Program, everyone at CHC was very excited, Mr. Masselli said to FierceHealthIT.

“It’s a really seminal research project, and we have been keeping an eye on the message [former President] Obama has laid out around the value of doing this.”

CHC operates  at 200 locations in Connecticut,  primarily caring for special populations who live in poverty. Mr. Masselli noted that the community is very   ethnically diverse.

Fierce reported  “that as part of the early trial for the PMI Cohort, CHC will help examine problems that may be faced as recruitment of patients starts, and how to scale the program up without facing barriers.”

“We’re sort of guinea pigs. We’re going to be poked and prodded and really think critically about what is an enormously exciting opportunity.”

CHC  has its own research arm called the Weitzman Institute, which, Mr. Masselli said, is unique among health centers and does a lot of work with scientific evidence and rigor to improve  primary care.

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Dignity, CHI launch precision-medicine program

Two major nonprofit integrated-delivery networks, San Francisco-based Dignity Health and Englewood, Colo.-based Catholic Health Initiatives, have formed what might be  America’s  largest precision-medicine program.

The Precision Medicine Alliance — a partnership formed as a limited-liability corporation between the two health systems — will make genetics-based diagnosis and treatment available at almost 150 community hospitals serving a total of  about 12 million patients a year..

The organization’s initial project  will  focus on diagnostic tumor profiling. Eventually, the program will move into predicting risk of cancer and cardiovascular disease, as well as into pharmacogenomics.

The partnership is  aligned with the  Obama administration’s Precision Medicine Initiative.

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White House releases cybersecurity guidelines for precision medicine

 

The Obama administration released its guidelines for establishing security expectations for organizations that participate in the Precision Medicine Initiative (PMI).

“The 10-page framework, which builds on the National Institute of Standards and Technology’s cybersecurity framework, is intended to be adaptable to the various participating PMI groups and is aimed at providing a broad framework for protecting data and transparency,’’ HealthcareDIVE reported.

It said that the framework includes eight overarching principles:

  • Setting a ‘participants first’ orientation that engenders trust.
  • Ensuring that security processes are adaptable to keep pace with technological advances.
  • Seeking to preserve data integrity.
  • Identifying key risks to security, while enabling research to progress.
  • Developing clear expectations and transparency around security processes.
  • Ensuring that security controls protect data, while maintaining access to those who need the data.
  • Minimizing exposure of participant data.
  • Sharing experiences and challenges with other PMI organizations.

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